Early onset can have direct impact on: families with children still at home or under parental care; relationships and social interactions or persons actively involved in the community; the individual’s career and the need to retire before traditional retirement years’ the individual’s self-confidence and self-worth at a time when a the person is feeling mentally somewhat in the “prime of life”; situations where the caregiver may now need to work full-time; the task of seeking out Social Security Disability if too young to obtain Social Security benefits; and so on. Early onset has a face of its own.
A View From Within, Thanddeus Raushi,
When I was diagnosed with Alzheimer’s I thought as did Larry Rose” I am much too young.” I looked around and I still said I’m much too young because those with the disease were people much older than I.
A View From Within, Thaddeus Raushi, p 39
Before I was diagnosed with Early Onset Alzheimer’s disease, I thought there was only one type of Alzheimer’s disease. I was totally unaware of the Early Onset type of Alzheimer’s. . .
Don’t Bury Me, It Ain’t Over Yet, Charles Schneider, p. 43
She was sitting and waiting. She was sitting and waiting to get worse. She was sick of just sitting and waiting to get worse. She was the only person she knew with early-onset Alzheimer's disease at Harvard. She was the only person she knew anywhere with early-onset Alzheimer's. Surely she wasn't the only one anywhere. She needed to find her colleagues.She needed to inhabit this new world she found herself in, this world of dementia.
Still Alice. Lisa Genova, p. 208
While still working I thought my increasing difficulty to understand and follow what I was reading was all part of “burning out” on the job.
A View From Within, Thaddeus Raushi, p 33