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History of Without Warning

Without Warning®: Supporting Those on the Journey of Younger Onset Alzheimer’s Disease began April 2004 through the Rush Alzheimer’s Disease Center (RADC) in Chicago. At that time, and unfortunately still today, few support programs were developed specifically targeted for people living with Alzheimer’s disease in mid-life.

Without Warning has grown from an average attendance of 15 to as high as 80 individuals.  Monthly meetings offer two different sessions for people with Alzheimer’s and at least three different sessions for family members. Meetings for children occur separately. 

Coordinating a program of this size has been a learning experience for the Without Warning Group Facilitators. Our group keeps learning, and we are constantly readjusting to meet the needs of our members. As facilitators we always need to change and adapt. 

The insights and suggestions of the Without Warning facilitators were the driving force for the Toolkit Project. We have also asked the Without Warning members, both people with Alzheimer’s disease and their family members, what they like about support groups and what they would suggest to people running those groups. Listening to their input has given great guidance and direction to the Without Warning program and the Toolkit Project. We are sure that their input and the input of those in your Support Groups will also help direct you and guide your own individual groups.

Being part of Without Warning helps me feel less alone and more understood. It's comforting to not have to explain, to be among people who are living a similar mind bending journey.  Advice is a gift given and shared as well. It helps lift the burden.

  • Without Warning members and staff share how the group is structured and what it means to them.